Syracuse Chapter annual Lift For Life to support the rare disease community set for July 19th at 7:00 p.m.


SYRACUSE LFL 17 TWITTERThe Syracuse Chapter of Uplifting Athletes will hold its annual Lift For Life to support the rare disease community on Tuesday, July 19th. The annual event is open to the public and starts at 7:00 p.m. inside Manley Field House.

Lift For Life is the signature fundraising event for the Uplifting Athletes nationwide network of chapters led by college football student-athletes.

Each chapter embraces the mission of Uplifting Athletes using college football as a platform to inspire the rare disease community with hope through the power of sport.

Fans and supporters can make a donation to any one of the 10 Orange teams by visiting their Lift For Life fundraising site. Simply find your favorite 2017 Syracuse Orange player and support that team.

The proceeds from the Syracuse Chapter annual Lift For Life support Uplifting Athletes and its commitment to life skills development, patient focused programs and rare disease research.

Today, the challenges faced by the rare disease community are bigger than any one individual, team or organization can tackle alone. The Syracuse Orange football student-athletes take pride in the opportunity to shine a spotlight on rare diseases.

Syracuse started tackling rare diseases in 2013 when it joined Uplifting Athletes. The student-athlete led chapter serves the rare disease community in honor of Rob Long, a former Orange punter and team captain.

The chapter also enjoys a endearing relationship with 8-year-old rare brain cancer patient Lillian Belfield and her family. Lillian’s attitude on life and her perseverance serve as an inspiration to the team and the Syracuse community.

Please support the Syracuse Chapter and help the Orange reach their ambitious $20,000 team Lift For Life goal.

Annual Leadership Development Conference arms student-athlete chapter leaders with tools for success


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As Uplifting Athletes continues to evolve and expand its footprint as a champion of the rare disease community, our nationwide chapter network led by current college football student-athletes continues to be the rock of our foundation.

Educating and training these leaders on the mission and vision of Uplifting Athletes is critical to being able to use the power of sport to inspire the rare disease community with hope. We want to enable these student-athletes to have the biggest impact they can.

This past weekend in Philadelphia, 23 chapter leaders from 14 universities came together for Leadership Development Conference 2017.

Led by the Uplifting Athletes staff, the conference was three days of education, training and relationship building all centered around making a greater impact on the rare disease community.

“I wasn’t aware of how much Uplifting Athletes has done and is doing. The platform we have is such an opportunity,” said Christian Groomes, a chapter leader from Clemson. “It was cool to see all the opportunities we have to raise money and support rare diseases. I think we are going to be a hit at Clemson with some of the ideas we have now.”

Chapter leaders from Clemson, NC State, Notre Dame, Penn State, Georgia Tech, Nebraska, Syracuse, Illinois, Florida State, Maryland, Stony Brook, Penn and Saint Francis committed a weekend of their short offseason to attend the conference.

Included in the workshop sessions on Saturday and Sunday were an overview of Uplifting Athletes, a team building exercise, Lift For Life and Touchdown Pledge Drive event planning, transferable life skills development, communication and social media training, and an introduction to rare disease patient engagement through Uplifting Experiences.

There was also a breakout session hosted by Kristen Angell from the National Organization for Rare Diseases (NORD).

In between work sessions, the student-athletes were able to experience some of the unique sights of Philadelphia. There was a cheesesteak lunch in Logan Park followed by a trip to the Art Museum and the “Rocky Steps” for team pictures. Lunch on Sunday was outside the famous City Hall, and the players were free Saturday evening to explore the city and spend some off time together.

“It was a great experience overall. I learned a lot and it was great to get to know the guys from other schools,” Penn State Chapter leader Jason Cabinda said. “There was a lot I can take back to the rest of the guys and share that will help us going forward.”

 

Uplifting Athletes set to host 24 student-athlete chapter leaders for 2017 Leadership Development Conference


LDC 17 GRAPHICFor our eighth consecutive year, we will gather college football student-athletes that are current or future chapter leaders together for three days of education and training during the Uplifting Athletes Leadership Development Conference.

This year 24 current football players from 13 universities across the country will travel to Philadelphia on Friday, May 19 to kick off a busy weekend of engaging work sessions, networking and relationship building.

Chapter leaders from Clemson, NC State, Notre Dame, Penn State, Georgia Tech, Nebraska, Syracuse, Illinois, Florida State, Maryland, Stony Brook, Penn and Saint Francis will start the 2017 conference with a team meal Friday night prior to a full Saturday agenda.

The weekend agenda is driven by the Uplifting Athletes staff, but will also feature a breakout session focused on the rare disease community hosted by Kristen Angell from the National Organization for Rare Diseases (NORD).

Included in the workshop sessions on Saturday and Sunday are an overview of Uplifting Athletes, a team building exercise, Lift For Life and Touchdown Pledge Drive event planning, transferable life skills development, communication and social media training, and an introduction to rare disease patient engagement through Uplifting Experiences.

We are very excited to bring this group together to learn from each other, to strategize together and to foster the sense of teamwork that inspires us all.

 

Former Syracuse Chapter Vice President Eric Anthony honored for work with Uplifting Athletes


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Senior Eric Anthony was one of three Syracuse student-athletes who earned recognition recently at the 2017 Syracuse University 44 Stars of Excellence Awards Gala.

The former vice president of the Syracuse Chapter of Uplifting Athletes was honored for his demonstration of outstanding dedication and commitment to a student organization and its mission.

Anthony earned the Mary Ann Shaw Center for Public and Community Service Award for his commitment to the community.

In addition to his work with Uplifting Athletes, Anthony served as the 2016-17 Syracuse Student-Athlete Advisory Committee (SAAC) vice president of community outreach. He earned undergraduate degrees in finance and real estate from the Whitman School of Management. At Syracuse, Anthony has helped spearhead the effort to raise more than $25,000 for children fighting rare diseases, delivered Easter baskets to children at Golisano Children’s Hospital and brought the Beads of Courage program to Syracuse Athletics. He also won the 2017 ACC Top 6 Service award.

On behalf of the rare disease community, Uplifting Athletes would like to congratulate Eric Anthony on winning this award and for inspiring others with hope through the power of sport.

 

 

Former Syracuse WR Amba Etta-Tawo to donate a portion of proceeds from autograph appearance on March 19 to Uplifting Athletes


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Former Syracuse All-American wide receiver Amba Etta-Tawo is coming off a strong NFL Combine and is returning to Central New York for an autograph session.

Amba will be at Cooperstown Connection inside Destiny USA on Sunday, March 19 from 2-4 p.m. If you are in the Syracuse area, come out and meet the Orange’s first All-American selection since 2001.

He is donating a portion of the proceeds he makes from his appearance to Uplifting Athletes and the Syracuse Chapter. The more autographs Amba signs, the more he donates.

Being a part of the Syracuse Chapter was an important part of Amba’s college experience. He furthered his commitment with a Leaping For Rare Diseases campaign during the recent NFL Combine, and plans to continue to support Uplifting Athletes and its mission to inspire the rare disease community with hope through the power of sport.

Trio shines a spotlight on rare diseases at NFL Combine and raises more than $9,000 for Uplifting Athletes


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Three former college football standouts gave a voice to rare diseases at the 2017 NFL Combine.

Garrett Sickels, Amba Etta-Tawo and Ifeadi Odenigbo each ran a Reps For Rare Diseases campaign in support of Uplifting Athletes and its mission to inspire the rare disease community with hope through the power of sport.

Fans and supporters could pledge any amount for each bench press repetition Sickels and Odenigbo completed and for each inch Etta-Tawo cleared in the vertical jump.

The trio combined to raise nearly $9,500 for life saving rare disease research with Uplifting Athletes.

Sickels, the former Penn State Chapter President, is the third Nittany Lion to run a Reps For Rare Diseases campaign following in the footsteps of Pittsburgh Steelers tight end Jesse James and Detroit Lions defensive end Anthony Zettel.

The former PSU defensive end wanted to surpass the fundraising totals of his former teammates. Sickels kept his end of the bargain by meeting his 20-repetition goal total to become the No. 1 Reps For Rare Diseases fundraiser by clearing $7,000 raised and smashing his $5,000 goal.

Syracuse’s Etta-Tawo and Northwestern’s Odenigbo each became the first representatives from their respective schools to run campaigns at the NFL Combine for Uplifting Athletes.

Thanks to all the fans who supported Sickels, Etta-Tawo and Odenigbo in their efforts to shine a spotlight on rare diseases at the 2017 NFL Combine.

Former Syracuse All-American WR Amba Etta-Tawo will be Leaping For Rare Diseases at NFL Combine


amba-rfrd-17-graphicFormer Syracuse All-American Amba Etta-Tawo has chosen to make the 2017 NFL Combine a platform to inspire the rare disease community with hope through the power of sport.

The wide receiver is doing a Leaping For Rare Diseases campaign to raise money for life saving rare disease research with Uplifting Athletes.

Fans can pledge any amount for every vertical leap inch Etta-Tawo clears at the 2017 NFL Combine by visiting Etta-Tawo’s fundraising page to learn more. His goal is to raise $3,000.

Etta-Tawo was part of a Syracuse Chapter that started tackling rare diseases in 2013 when it joined Uplifting Athletes. The college football student-athlete led chapter held its third Lift For Life in 2016 and set a record by raising more than $20,000. The Syracuse Chapter also enjoys a special relationship with 8-year-old rare disease patient Lillian Belfield and her family.

Being part of the Syracuse Chapter was an important part of Etta-Tawo’s college experience and is why he chose to launch his Leaping For Rare Diseases campaign.

“It is an honor to be able to use the platform to help raise awareness and contribute to the research of rare diseases,” Etta-Tawo said. “What’s so special about this organization is that the proceeds not only help fund the research, but also helps patients suffering from these diseases.”

Make your pledge now to join Amba Etta-Tawo in the fight against rare diseases at the NFL Combine.