A successful 2018 Year In Review


HappyHolidays-UAMay your days be filled with Peace, Hope and Joy this Holiday Season!

On behalf of the 30 million Americans that comprise the Rare Disease Community, our staff and team of college football student-athletes thank you for your loyalty and support in 2018!  It has been a memorable year and we thank you for helping us achieve our mission.

Most recently, our team was able to be a part of an Uplifting Experience in Seattle. Former University of Illinois and current Seattle Seahawks wide receiver, Malik Turner, hosted a rare disease patient family for the day at the Seahawks facility. Turner continued to build on that relationship during the NFL My Cause My Cleats campaign by securing tickets for ADNP patient Tony Sermone and his family for the game. One of his cleats had the initials “T” and “S” on the back in Tony’s honor. After the game Malik was able to present the signed cleat he wore in the game to Tony.

MALIK YEAR END GRAPHIC

Without your support this type of Uplifting Experience would not be possible. Would you consider making a year-end donation to Uplifting Athletes?

2018 also featured plenty of new and exciting milestones for Uplifting Athletes including:

-New Uplifting Athletes chapters established at Western Michigan, Davidson and Lehigh.

-38 NFL prospects participated in our Reps For Rare Diseases campaign during their NFL Combine and individual pro day workouts.

-Held our inaugural Young Investigator Draft in August at Lincoln Financial Field in Philadelphia and scheduled our 2019 event for March 9th back at the home of the Philadelphia Eagles. The Young Investigator Draft is the result of our ongoing commitment to rare disease research. In 2018 we distributed six $10,000 grants to six individual researchers.

YID MAILCHIMP 1

-During the 2018 season, the first ever Rare Disease Awareness Games were held involving Uplifting Athletes Chapter match-ups between Syracuse vs. Western Michigan and Penn vs. Princeton. The chapters wore Uplifting Athletes helmets stickers, #WeTackleRare wristbands and recognized local rare disease patient families during a game break.

-We crowned Coach Joshua Eargle from Austin Peay State University as the 11th winner of the Rare Disease Champion Award – given to a leader in college football who has realized his or her potential to make a positive and lasting impact on the Rare Disease Community. We also enjoyed seeing our 10th winner of the award, Shaquem Griffin from UCF, selected in the fifth round of the 2018 NFL Draft by the Seattle Seahawks.

These are just a few of the 2018 highlights. We have bigger and bolder plans for 2019. As always, though, we need your help.

Please consider giving a gift to support the Rare Disease Community we serve. We can’t do any of this without you!

#WeTackleRare

Scott, Rob, Brett, John, Karen and Andy

 

 

Special day on campus for Princeton-Penn rivalry game involves Rare Disease Community


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You could feel the electricity in the air Saturday on campus as the Princeton football team prepared to host rival Penn in the final game of the season.

The Tigers were on the cusp of an undefeated season and claiming the Ivy League championship.

Saturday was also a special day for the Rare Disease Community inside Princeton Stadium.

The leaders of the Uplifting Athletes chapters at each university picked this match-up to serve as a Rare Disease Awareness Game to show their ongoing support for the rare disease cause.

Players from each team wore Uplifting Athletes stickers on their helmets and pulled on blue #WeTackleRare wristbands in a show of unified support for the Rare Disease Community each chapter champions.

And with the help of Uplifting Athletes Executive Director Rob Long and Director Sports Impact Brett Brackett, the Masciantonio family from The For The Love Of Grace Foundation was able to attend their first college football game together.

It was a busy Saturday in Princeton, New Jersey.

Gianna Masciantonio is a 4-year-old rare disease patient who is diagnosed with a rare brain tumor. Her parents, Joe and Kristen, started the For The Love Of Grace Foundation in honor of their daughter.

“We wanted to help others in the same situation,” Kristen Masciantonio said. “We give 100 percent of what we raise to research and to help families. We don’t have any overhead. I mean, who can you not help other families, right?”

In between the first and second quarters Gianna, her older brother Dominic, Joe and Kristen and Uplifting Athletes staff were recognized on the field as an extension of the hard work Princeton and Penn football programs put forth to support the Rare Disease Community.

“People just don’t fully understand what families like ours and others like ours go through,” Kristen Masciantonio said. “This is an important part of the support we need to feel. Support is important.”

Princeton went on to beat Penn to complete their perfect season and hoist the trophy as Ivy League champions. On the field they are competitors, but off the field the Tigers and Quakers football student-athletes share a common bond of shining a spotlight on the Rare Disease Community.

Thank you to the athletic departments at Princeton and Penn for supporting the football student-athletes of each chapter to make this a special day that extends well beyond 60 minutes of football.

 

 

Princeton Tigers complete perfect season highlights Week 12 Chapter Update


PRINCETON GRAPHICPrinceton finished off its first perfect season since 1964 and earned the 2018 Ivy League title with a victory over rival Penn in front of nearly 8,000 fans.

The victory clinched the fourth outright Ivy League title in program history, and the first since 1995. It was also the program’s second 7-0 Ivy season since league play officially began in 1956.

Princeton raced out to a 21-0 lead before Penn battled back with a score just before the half and on its opening possession of the third quarter to slice the deficit to 21-14.

The second touchdown of the game made the 2018 Princeton Tigers the highest scoring offense in Ivy League history. Princeton finished the season with 470 points, surpassing the previous record of 437 points, set by the 2013 Tigers Ivy League championship team.

Teams from the Ivy League are not eligible for the NCAA FCS playoffs. Princeton ended the regular season as the second-ranked scoring offense, the third-ranked total offense and the sixth-ranked rushing offense in the FCS.

Princeton QB John Lovett put up nearly 400 yards of offense and set an Ivy League record to earn the Uplifting Athletes Rare Performance of the Week honor

Colgate: For the first time since 2003, the Raiders will host a home playoff game. Colgate dropped its regular-season finale with now nationally ranked Army by two touchdowns. But the 9-1 Patriot League champion Raiders earned a No. 8 seed from the NCAA FCS football playoff committee. Colgate has a bye in the first round and will host the winner of James Madison vs. Delaware at Andy Kerr Stadium on December 1.

Notre Dame: The Fighting Irish took a huge step toward securing a berth in the College Football Playoff behind a defense that stymied No. 12 Syracuse at Yankee Stadium. Notre Dame limited an Orange offense that had been averaging nearly 500 yards and 44 points a game to less than 250 yards and a late field goal. The Irish D posted three interceptions, six sacks and had 11 tackles for a loss. Notre Dame is 11-0 and closes the regular season with a road game at USC.

Clemson: Despite a slow start offensively, the undefeated Tigers continued their march toward another ACC title and berth in the College Football Playoff with a victory over Duke. Clemson fell behind 6-0, then rallied with a pair of touchdowns in the second and third quarters. Running back Travis Etienne put the game away with touchdown runs of 27 and 29 yards in the third quarter.

Davidson: With four straight losses by a touchdown or less, the Wildcats found themselves in another tight battle with Butler down the stretch. Of those four losses, one game in double overtime and the other three Davidson had the lead with 4:00 to play. The Wildcats defense came up huge this time, stopping Butler four times from inside the 5-yard-line in the final minute for an epic goal-line stand. The victory allowed Davidson to finish 6-5 overall and post its first winning season since 2007.

Northwestern: The Big Ten West champion Wildcats used three rushing touchdowns to subdue Minnesota and in the process earned road victory No. 8 in a row for Northwestern. The Wildcats also improved to 7-1 in conference play for the first time since 1996.

Penn State: Freshman tight end Pat Friermuth caught a pair of touchdown passes and the Nittany Lions defense came up with three takeaways to power No. 15 PSU past Rutgers. The win was No. 30 for senior quarterback Trace McSorley, giving him the school record for victories. In addition, McSorley became just third quarterback in Big Ten history to surpass 100 career touchdowns responsible for, joining Drew Brees (Purdue) and J.T. Barrett (Ohio State) as the only Big Ten quarterbacks to accomplish the feat.

Lehigh: In the 154th meeting with rival Lafayette, the Mountain Hawks used a fast start to grab a 17-0 lead before the game was nine minutes old and never looked back. The Lehigh defense limited Lafayette to 234 total yards and its fewest points since beating Georgetown 35-3 in 2016.

NC State: The Wolfpack scored a season-high 52 points and put up the most points in an ACC road game since they scored 55 at Duke in 2001. NC State wide receiver Kelvin Harmon had seven catches for 100 yards and touchdown. Harmon, a junior from New Jersey, went over 1,000 yards receiving for the second straight season. He is only the third player in school history (Torry Holt, Jerricho Cotchery) to eclipse 1,000 yards receiving twice in his career.

Fordham: Led by defense that improved as the season went along, the Rams closed out the season with a road victory. Antonio Jackson picked off a pass for Fordham and returned it 70 yards for a touchdown just before halftime to put the Rams ahead for good in this low-scoring affair.

Florida State: The Seminoles snapped a three-game losing streak in dramatic fashion by using a big play in the final 2 minutes to rally past No. 22 Boston College at home. FSU quarterback Deondre Francois hit Tamorrion Terry with a 74-yard catch-and-run touchdown with 1:49 to play to put the Seminoles in front for good. This was the Seminoles first win over a ranked opponent since the 2016 Orange Bowl victory against Michigan.

Chapter Scoreboard Week 12 v.'18

 

Penn and Princeton football programs team up to make 110th meeting between the rivals Saturday a Rare Disease Awareness Game


PENN PRINCETON RDAG 18 GRAPHICUplifting Athletes is proud to announce that the Princeton and Penn football programs have joined forces for their upcoming 2018 regular season finale to shine a spotlight on the Rare Disease Community.

The chapter leaders from each school, with the support of both universities, worked together to make the match-up between the Tigers and Quakers on Saturday, November 17 at Princeton Stadium an Uplifting Athletes Rare Disease Awareness Game.

Rare disease patients, caregivers and families will be in attendance at this traditional rivalry game, and will be hosted by each university to show their ongoing support of the rare disease cause.

Players from each team will have Uplifting Athletes stickers on their helmets and wear #WeTackleRare wrist bands in a show of unified support of the Rare Disease Community each chapter champions.

“In the competitive landscape of college football, Penn Princeton is one of the great rivalries,” Uplifting Athletes General Manager Brett Brackett said. “We were thrilled when our two chapter leaders agreed to put their on-field differences aside to share game day with local rare disease patients, and add another dimension that shows ongoing support for the entire Rare Disease Community.”

During one of the television timeouts during the game, rare disease patients, families and caregivers will be the honored on the field in recognition of the two programs coming together to support one cause.

During the month of October each school participated in the month-long Uplifting Athletes Touchdown Pledge Drive to support the Rare Disease Community. The chapter leaders of each school wanted to extend that opportunity to financially support their Touchdown Pledge Drive to include this rivalry game and make each touchdown scored matter more.

Thank you to the athletic departments at Princeton and Penn for supporting the football student-athlete leaders of each chapter by allowing them to recognize the Rare Disease Community as part of this game.

Penn Chapter leader and wide receiver Steven Farrell featured in the latest Beyond The Trophy series


FARRELLEach week during the college football season we will feature a player who is an officer for an Uplifting Athletes Chapter for our Beyond the Trophy series.

 Name: Steven Farrell

College: University of Pennsylvania

Height, weight, class, position: 6-foot-4, 205-pound, senior, wide receiver

High School: Pasack Valley HS in Hillsdale, New Jersey

About Farrell: A two-sport standout coming out of high school, Farrell played football and lacrosse. After sitting out his freshman year, the wide receiver appeared in 10 games as a sophomore in 2016 with four catches. … Last season he became a starter for the Quakers and had his first collegiate touchdown, a 31-yard grab against Cornell on November 18, 2017. Part of the leadership team for the Penn Chapter of Uplifting Athletes and aspires to be a doctor. … This season Farrell has emerged as a go-to target with 38 catches and more than 500 receiving yards with a pair of touchdowns. Had his first career 100-yard game in a victory over Yale with seven receptions for 173 yards and a touchdown.

What is your most memorable experience as a college football player?

Farrell: One of my most memorable experiences as a college football player was my freshman year when we were playing Princeton at home. We were tied and Princeton was kicking a field goal during the final seconds of the fourth quarter and our linebacker Donnie Panciello blocked it. Then in OT we scored the game winning touchdown and I think experiencing that as a freshman really cemented my love for Penn football.

What drove you to get involved with Uplifting Athletes?

Farrell: The older guys on our team who were involved with Uplifting Athletes caught my attention as well as Dr. (David) Fajgenbaum, who I was lucky enough to do research with my sophomore summer. He speaks to our team each year and his fight against Castleman disease is a big reason why I am involved with Uplifting Athletes.

What have you learned from your experience with Uplifting Athletes?

Farrell: I have learned that it is important to use your platform and whatever other resources you have available to help others. I am extremely fortunate to be an Ivy League student-athlete and I would be doing a disservice if I didn’t try to help people in different circumstances. Being involved with UA to help raise money for rare diseases is a way for me to use my voice and platform to help others.

As a player, what is your favorite part of the game day experience at your home stadium?

Farrell: My favorite part of the game day experience is seeing the final seconds tick off the scoreboard and celebrating a win with my brothers because we play for each other.

Who is your favorite NFL player and why?

Farrell: My favorite NFL player is Damon “Snacks” Harrison because his nickname is funny, and he is on the Giants.

 If you could have lunch with any one person (dead or alive), who would you choose and why?

Farrell: I would have lunch with my grandpa who died when I was too young to remember him. I can see how much my mom and grandma loved him, and I can only imagine what it would be like to talk to him now. I think he would have had a significant impact on my life and I think about him a lot.

What is your favorite road stadium you ever played in and why?

Farrell: My favorite road stadium that I’ve played in is Dartmouth. The night games there are awesome and they have a great atmosphere, and although the bus ride back home is long, it’s peaceful and makes the win all the more worthwhile.

HOT SEAT QUESTIONS

What is your perfect pizza?

Farrell: Chicken-bacon-ranch from Francesca’s in River Vale, New Jersey

Last 3 songs you added to your playlist?

Farrell: Freestyle by Lil Baby, Good Life by Collie Buddz, and DEEPER THAN RAP by YG

What is your go-to fast food restaurant?

Farrell: Popeyes

Favorite sports team (any sport)?

Farrell: University of Pennsylvania Football

What is the most used app on your phone?

Farrell: XOS ThunderCloud

No. 1 goal for yourself in 5 years?

Farrell: Be in my 4th year of medical school applying for residency positions

 

 

 

Baylor pulls off upset of Oklahoma State highlights Week 9 Chapter Upate


BAYLOR GRAPHICIn his second season in charge at Baylor, head coach Matt Ruhle declared the goal for this season was to become bowl eligible. The Bears were 1-11 a year ago and are in the midst of a massive program re-build.

What might be considered normal preseason coach speak was exactly what Ruhle believed was possible for this team. And with an impressive home upset of Oklahoma State in come-from-behind fashion, Baylor is one victory away from achieving that goal.

Quarterback Charlie Brewer, who didn’t start but entered the game in the second half on the heels of spending time in concussion protocol during the week, led the Bears on three touchdown drives in the final 16 minutes.

Brewer completed only four passes, but his final one to Denzel Mims covered six yards for a touchdown with 7 seconds remaining to give Baylor a dramatic come-from-behind victory. It was Mims’ only catch of the day after sitting out almost the entire game with an illness.

Nick Rinella goes old-school and does a little bit of everything for Saint Francis to earn Uplifting Athletes Rare Performance of the Week honors

Princeton: The No. 17 ranked Tigers moved to 8-0 for the first time since 1995 and took over sole possession of first place in the Ivy League with an emotional and dramatic come-from-behind victory over No. 20 Dartmouth in a battle of two previously unbeaten squads. In a game dominated by defense, Princeton QB John Lovett powered over from the 5-yard-line with 6:33 to play for the winning touchdown. Dartmouth held a 9-7 lead for nearly two quarters after notching a safety in very early stages of the second quarter.

Colgate: The No. 11 ranked Raiders wrapped up their 10th Patriot League title and third in the last four years with perhaps its best showing of the season, a 41-0 blanking of Fordham. Colgate scored 14 points in the first quarter and led 31-0 at halftime. The Raiders not only rushed for a season-high 364 yards – best total since 2012 – but the Colgate defense set a program record by limiting the Rams to minus-50 yards rushing. The shutout was No. 5 on the season for the Raiders, who have not surrendered a touchdown since the 6:59 mark of the fourth quarter in the season opener against Holy Cross. That’s a streak of nearly 430 minutes.

Illinois: Led by a running game that gashed Minnesota for a 430 yards – the most since 2010 – the Orange and Blue improved to 4-5 overall this season. Junior running back Reggie Corbin racked up a career-high 213 yards on just 13 carries (16.4 yards per carry). Corbin found a hole on the Illini’s second offensive snap of the game and outraced the Gopher defense for a 72-yard touchdown to put Illinois in front for good. Corbin also added a 77-yard touchdown in the third quarter, giving him four runs of 70-plus yards on the year.

Syracuse: Playing as a ranked team for the first time since 2001, the Orange pounded Wake Forest by running the ball 60 times for 264 yards and five touchdowns on the ground. A little sluggish early, Syracuse fell behind 10-0 early, but responded with 28 unanswered points to seize control. The road victory was the first in the ACC for the Orange since 2016.

Saint Francis: Using a defense that notched four turnovers, three sacks and nine tackles for a loss, the Red Flash won back-to-back games for the first time this season. Junior safety Nick Rinella led Saint Francis in rushing yards, tackles and kick returns yards. He also iced this game with a late fourth-quarter interception in the end zone.

Catch up with Saint Francis Chapter leader Nick Rinella in the latest installment of our Beyond The Trophy Series

Lehigh: Sophomore wide receiver Jorge Portorreal had a career-high nine catches for 216 yards and a pair of touchdowns to pace a Mountain Hawks offense that piled up 550 yards and scored 45 points to end Lehigh’s seven-game losing streak.

Clemson: The Tigers offense exploded for a season-high 77 points to move to 9-0 and remain square in the middle of the College Football Playoff picture as the consensus No. 2 ranked team in the country. The run game powered the Tigers offensively, accounting for 492 of the 661 total yards. Travis Etienne, Lyn-J Dixon and Tavien Feaster each eclipsed 100 yards rushing and combined for four touchdowns. It was the second time this season a trio of Clemson running backs went over the 100-yard mark in the same game.

Penn: For the second game in a row the Quakers defense allowed only a single touchdown, and the offense scored 17 second-half points to nudge past Cornell. The defense for the 6-2 Quakers limited Cornell to 317 total yards while recording eight tackles for a loss and three sacks.

NC State: Freshman running back Ricky Person, Jr. scored three touchdowns and kicker Christopher Dunn kicked four field goals as the duo combined for 35 points in a victory over Florida State that halted the Wolfpack’s two-game slide. NC State is bowl eligible for the fifth consecutive season. Person’s three touchdowns is the most for a freshman since 2013.

Notre Dame: Fighting Irish quarterback Ian Book overcame a sluggish first half to rally undefeated Notre Dame on the road against Northwestern. Book was 15 of 19 for 236 yards and a pair of touchdowns in the second half. He finished with 399 total yards for the Irish (343 passing, 56 rushing) including a 23-yard touchdown run to ice the victory with 2:45 to play.

WEEK 10 SCOREBOARD

October meant much more than six points per touchdown for the Rare Disease Community


TDPD 18 WRAP-UP GRAPHICFor the participating members of our nationwide network of college football student-athlete led chapters, touchdowns during the month of October meant more than six points on the board. Each touchdown provided support to the Rare Disease Community.

The Touchdown Pledge Drive 2018 month-long campaign took place on 15 university campuses. Clemson, Colgate, Davidson, Fordham, Illinois, Lehigh, NC State, Northwestern, Penn, Penn State, Princeton, Saint Francis, Stony Brook, Syracuse and Western Michigan all participated.

“I am very impressed with our chapter leaders and how they took advantage of their platform to provide much needed awareness and support to the Rare Disease Community,” Uplifting Athletes Director Sports Impact Brett Brackett said.

Using the on-field performance of touchdowns scored is a simple way for chapter leaders to share the rare disease cause with their fan bases and leverage their platform when they are most relevant. This year the 15 schools combined to score 222 touchdowns in October.

Raising awareness for the cause on behalf of the Rare Disease Community is another pillar of the Touchdown Pledge Drive campaign. With the help of university athletic communications, individual student-athletes and coaches commitment to raising awareness, this year the campaign generated four million impressions on social media.

“We are grateful to everyone who supported this month-long campaign, chapter leaders, coaches, athletic departments and fans,” Brackett said. “Thanks for being part of our team during October and using your performance on the field to have a real impact off the field.”

The direct impact on the Rare Disease Community came through the fundraising for each touchdown scored. And those 222 touchdowns scored raised more than $25,000 to support the mission of Uplifting Athletes and its charitable programs: Rare Disease Awareness, Rare Disease Research, Uplifting Experiences and Uplifting Leaders.

Illinois, Penn State and Western Michigan chapters were the top three on the fundraising impact leaderboard with the Fighting Illini leading the pack.

The challenges faced by the Rare Disease Community are bigger than any one individual, team or organization can tackle alone. The grassroots effort of our nationwide network of teams is uniquely positioned shine a spotlight on rare diseases.

Through Touchdown Pledge Drive our chapters came together as one team each working hard to meet their individual goal in order to help us all Tackle Rare Diseases.