Lift For Life 2019 was a tremendous success and saw a record 21 college football chapters hold events


Over the course of five months, earlier this year, a record 21 members of the Uplifting Athletes’ chapter network held our signature event, Lift For Life, to raise awareness and funds in support of the Rare Disease Community.

Lift For Life 2019 was conducted in two phases. It started in Philadelphia with Penn on February 23 and finished in Waco, Texas with Baylor on July 24.

In between, the impact these student-athletes had on the Rare Disease Community, using their platform and voice as college football players to inspire others and support the cause, was staggering.

“While each program uses their platform in their own unique way, the common thread that unifies our chapter network is the forward thinking that enables these special student-athletes to empower their teammates to share their spotlight in order to shed light on a community that truly needs, values and appreciates the support,” said Uplifting Athletes Director of Sports Impact Brett Brackett. “Uplifting Athletes is humbled to work with such incredible student-athletes.”

During this year’s Lift For Life season, the audience created by these 21 chapters was over 52 million. More than 34 million of that came through social media followers and another 18.5 million was generated by online news focused on the 2019 events.

Every Lift For Life is unique at each university campus, but the driving force behind the event is the same for all our chapters nationwide. Lift For Life is an opportunity for teams to take a regular strength and conditioning workout and use it to raise money and awareness for the Rare Disease Community.

This year, Lift For Life raised nearly $175,000. The proceeds from Lift For Life support the mission of Uplifting Athletes and its charitable programs: Rare Disease Awareness, Rare Disease Research, Uplifting Experiences and Uplifting Leaders.

Once Penn kicked off Lift For Life 2019, Phase 1 charged into high gear with Stony Brook, Saint Francis, Davidson, Lehigh, Marist and Princeton holding events in March, April and May.

Phase 2 of Lift For Life was ignited by Northwestern and Western Michigan lighting the fuse with events in May and June, respectively.

That set the table for the Rare Road Trip 2019 – the final Lift For Life blitz that saw 12 chapters hold events over a 12-day period in July.

Kent State started the Rare Road Trip 2019 ball rolling and was followed by Penn State, Florida State, Clemson, NC State, Syracuse, Maryland, Notre Dame, Colgate, Illinois, Eastern Illinois and was capped off by Baylor.

The record 21 FBS and FCS chapters that gave their all to support the Rare Disease Community represented 10 NCAA Football Conferences including: Ivy League, Colonial Athletic Association, Northeast Conference, Pioneer Football League, Big Ten Conference, Mid-American Conference, Atlantic Coast Conference, Patriot League, Big 12 and Ohio Valley Conference.

Congratulations to Lehigh, Marist, Western Michigan, Kent State and Eastern Illinois for each holding its inaugural Lift For Life this year. It’s an honor to have those programs join our team.

“Lift For Life 2019 reached new heights with a record number of chapters hosting events and five programs holding their first Lift For Life as part of our team,” Brackett said. “We are grateful to everyone involved for making Lift For Life a success and joining us to inspire the Rare Disease Community with hope.”

Seven chapters make for a busy and successful Spring Lift For Life schedule


This was a busy spring with seven chapters holding Lift For Life events in support of Uplifting Athletes and its mission to inspire the Rare Disease Community with hope through the power of sport.

Penn, Stony Brook, Saint Francis, Davidson, Lehigh, Marist and Princeton, all FCS college football programs, recently held their annual Lift For Life events.

2019 Penn Chapter Lift For Life

For the Lehigh and Marist Chapters, 2019 was their inaugural Lift For Life as part of the Uplifting Athletes team.

“Starting an Uplifting Athletes chapter at Marist is an opportunity I couldn’t pass up on. I’ve always wanted to get involved in the community and help those who need it and with Uplifting Athletes I believe that’s possible,” said Red Foxes safety and Marist Chapter founder Paul Olivett. “On behalf of Marist and the football team, we look forward to being a part of the many college teams tackling rare diseases.”

Lift For Life is the signature fundraising event of the Uplifting Athletes nationwide network of chapters led by college football student-athletes.

2019 Lehigh Chapter Lift For Life

Lift For Life is unique at each university campus, but the driving force behind the event is the same for all our chapters nationwide. Lift For Life is an opportunity for teams to take a regular strength and conditioning workout and use it to raise money and awareness for the Rare Disease Community.

The Davidson Chapter reached a milestone this year when it became only the fourth Uplifting Athletes Chapter to raise more than $10,000 in each of its first two Lift For Life events joining Penn State, Boston College and Notre Dame in rare fundraising air.

“It’s been incredible to see the development and growth of our Uplifting Athletes Chapter at Davidson College,” Davidson Chapter leaders and co-founders George Hatalowich and Kevin Stipe said. “Our success is truly a testament to the players, coaches, and athletic department that bought into the organization and our chapter’s goals.

“We are extremely proud to be a part of Davidson’s Chapter and we can’t thank the Uplifting Athletes organization enough for their continuous support and guidance throughout this entire process.”

2019 Davidson Chapter Lift For Life

The seven events to kick off the 2019 Lift For Life schedule this spring raised more than $50,000 to support the mission of Uplifting Athletes and its charitable programs: Rare Disease Awareness, Rare Disease Research, Uplifting Experiences and Uplifting Leaders.

“It is an honor to be able to use our platform to help raise awareness and support the Rare Disease Community through Uplifting Athletes,” Saint Francis Chapter President Nick Rinella said. “We are all proud to be part of a team that is working so hard to tackle rare diseases.”

Today, the challenges faced by the Rare Disease Community are bigger than any one individual, team or organization can tackle alone. Each chapter is part of the nationwide network of teams that are uniquely positioned to educate and engage their local community to shine a spotlight on the rare disease cause.

Lift For Life will continue throughout the summer with the FBS schools kicking their offseason training into high gear along with a couple FCS schools that opted for summer events instead of the spring.

“Uplifting Athletes has given me a humbling and incredible opportunity to help give back to the Rare Disease Community,” Princeton Chapter President and offensive lineman Luke Aschenbrand said. “Meeting rare disease patients who appreciate the effort we put in and are thankful for the outreach of their message makes what we do worth it.

2019 Princeton Chapter Lift For Life

Uplifting Athletes’ 10th Leadership Development Conference in Atlanta covered a lot of ground


The essential core of the Uplifting Leaders program is the college football student-athletes that steer our chapters at universities across the country.

This past weekend more than 40 individual leaders from 20 college football programs traveled to Atlanta for the 10th annual Leadership Development Conference.

The three-day conference was hosted by Uplifting Athletes, and run by Director of Sports Impact Brett Brackett, a former Penn State Chapter President who attended the inaugural conference in 2010.

“Uplifting Athletes is grateful to be engaged with such enthusiastic student-athletes motivated to leverage their platform for good,” Brackett said. “I am excited to see how this group of student-athletes takes the knowledge gained from the conference and uses the power of sport to inspire the Rare Disease Community with hope.”

Following a meet-and-greet team dinner Friday night, the conference kicked off Saturday morning with a full day of programming that was driven by Uplifting Athletes four program pillars – Uplifting Leaders, Uplifting Experiences, Rare Disease Awareness and Rare Disease Research.

Morning sessions covering the four programs were followed by a panel of former college football student-athletes sharing their stories and advice about making the transition from student-athlete to the professional world.

The lively and open discussion was spearheaded by panelists Pat Boyle, Drew Butler, Stephon Morris and Stephen Obeng-Agyapong.

“The conference was a great experience for me to learn more how to utilize my platform to impact the Rare Disease Community,” Penn State Chapter leader Sean Clifford said. “I am glad I had the opportunity to represent Penn State Football and grow as a leader.”

To kick off the afternoon, Uplifting Athletes Executive Director Rob Long shared his story about being a rare disease patient and how that shaped him to become a leader, advocate and difference maker for the Rare Disease Community.

Long’s hour-long presentation set the table for a tour of the College Football Hall of Fame and an Uplifting Experience where nearly 20 rare disease patients, caregivers and family members teamed up with the student-athletes.

“For me Leadership Development Conference 2019 was all about the people. You are surrounded with other college football players from all around the country and get to learn about their own connections with rare diseases and how much it affects us all,” Northwestern Chapter leader Joe Spivak said. “And then to be paired with a family going through the fight at the College Football Hall of Fame puts everything in that much more perspective.

“Those interactions, along with all the work with everyone from the Uplifting Athletes staff, showed me the true difference we can make in this community through the power of the sport we are all so blessed to be a part of.”

Gabe Low, a 17-year-old Hawaii native who was born with a rare genetic disorder, took center stage on Sunday to share his story about why he did the 3,500-mile Ride For Rare Diseases and talked about the impact of awareness created by using his platform.

The conference also featured sessions on Lift For Life and Touchdown Pledge Drive and next steps moving forward as these leaders prepare for 2019.

“If their attentiveness and commitment at the conference is any sign of what’s to come from this group of leaders … I believe 2019 could be something special,” Brackett said. “Their level of engagement leads me to believe we will see a high level of awareness and fundraising for the Rare Disease Community through Uplifting Athletes chapters across the country.”

Among the 20 schools that were represented in Atlanta, two of those are prospective Uplifting Athletes Chapters. Kent State and New Mexico had student-athletes attending for the first time.

Current Chapter leaders from Clemson, Colgate, Davidson, Florida State, Lehigh, NC State, Notre Dame, Penn State, Syracuse, Saint Francis, Penn, Northwestern, Maryland, Princeton, Stony Brook, Fordham and Western Michigan were also in attendance.

A special thank you to all our supporters who made this conference possible. With your help, these young men are making a difference in the Rare Disease Community.

Uplifting Athletes to welcome 40-plus college football student-athletes for 10th Leadership Development Conference in Atlanta


ldc 19 graphic

The bedrock of the Uplifting Leaders program at Uplifting Athletes is the college football student-athletes that guide our nationwide network of chapters.

These student-athletes already have the drive and passion to help others and that is why they chose to step up and become chapter leaders to help us serve the Rare Disease Community.

In order to help them become even stronger leaders and advocates, Uplifting Athletes will gather these college football student-athletes together in late January for three days of education, training and networking at the 2019 Leadership Development Conference in Atlanta.

This will be the 10th consecutive year Uplifting Athletes has put together a weekend of intense leadership development and relationship building for current and prospective chapter leaders.

“We are thrilled to host a fantastic group of student-athletes for a three-day conference focused on enhancing life skills, transferable skills recognition, and leadership development through Uplifting Athletes programming,” Uplifting Athletes Director of Sports Impact Brett Brackett said. “Our goal is to provide the student-athletes with the skills necessary to returned to campus empowered to make a positive impact on the Rare Disease Community.

This year 40 current football players from 20 universities across the country will travel to Atlanta on Friday, January 25 to kick off a busy weekend of engaging work sessions, networking and relationship building.

Among the 20 schools that will be represented in Atlanta, four of those are prospective Uplifting Athletes Chapters. Kent State and New Mexico have student-athletes attending for the first time.

Current Chapter leaders from Clemson, Colgate, Davidson, Florida State, Lehigh, NC State, Notre Dame, Penn State, Syracuse, Illinois, Saint Francis, Penn, Northwestern, Maryland, Princeton, Stony Brook, Fordham and Western Michigan will also be in attendance.

The 2019 Leadership Development Conference will kick off with a team meal Friday night prior to a full weekend agenda.

The conference content is developed and driven by the Uplifting Athletes staff, but will also feature a panel of former student-athletes answering questions about the transition to the professional world.

Included in the workshop sessions on Saturday and Sunday are an overview of Uplifting Athletes, Lift For Life and Touchdown Pledge Drive event planning and transferable life skills development.

The highlight of Saturday will be an Uplifting Experience for the student-athletes to interact with local Atlanta area rare disease patients.

We are very excited to bring this group together to learn from each other, to strategize together and to foster the sense of teamwork that inspires us all.

A successful 2018 Year In Review


HappyHolidays-UAMay your days be filled with Peace, Hope and Joy this Holiday Season!

On behalf of the 30 million Americans that comprise the Rare Disease Community, our staff and team of college football student-athletes thank you for your loyalty and support in 2018!  It has been a memorable year and we thank you for helping us achieve our mission.

Most recently, our team was able to be a part of an Uplifting Experience in Seattle. Former University of Illinois and current Seattle Seahawks wide receiver, Malik Turner, hosted a rare disease patient family for the day at the Seahawks facility. Turner continued to build on that relationship during the NFL My Cause My Cleats campaign by securing tickets for ADNP patient Tony Sermone and his family for the game. One of his cleats had the initials “T” and “S” on the back in Tony’s honor. After the game Malik was able to present the signed cleat he wore in the game to Tony.

MALIK YEAR END GRAPHIC

Without your support this type of Uplifting Experience would not be possible. Would you consider making a year-end donation to Uplifting Athletes?

2018 also featured plenty of new and exciting milestones for Uplifting Athletes including:

-New Uplifting Athletes chapters established at Western Michigan, Davidson and Lehigh.

-38 NFL prospects participated in our Reps For Rare Diseases campaign during their NFL Combine and individual pro day workouts.

-Held our inaugural Young Investigator Draft in August at Lincoln Financial Field in Philadelphia and scheduled our 2019 event for March 9th back at the home of the Philadelphia Eagles. The Young Investigator Draft is the result of our ongoing commitment to rare disease research. In 2018 we distributed six $10,000 grants to six individual researchers.

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-During the 2018 season, the first ever Rare Disease Awareness Games were held involving Uplifting Athletes Chapter match-ups between Syracuse vs. Western Michigan and Penn vs. Princeton. The chapters wore Uplifting Athletes helmets stickers, #WeTackleRare wristbands and recognized local rare disease patient families during a game break.

-We crowned Coach Joshua Eargle from Austin Peay State University as the 11th winner of the Rare Disease Champion Award – given to a leader in college football who has realized his or her potential to make a positive and lasting impact on the Rare Disease Community. We also enjoyed seeing our 10th winner of the award, Shaquem Griffin from UCF, selected in the fifth round of the 2018 NFL Draft by the Seattle Seahawks.

These are just a few of the 2018 highlights. We have bigger and bolder plans for 2019. As always, though, we need your help.

Please consider giving a gift to support the Rare Disease Community we serve. We can’t do any of this without you!

#WeTackleRare

Scott, Rob, Brett, John, Karen and Andy

 

 

Special day on campus for Princeton-Penn rivalry game involves Rare Disease Community


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You could feel the electricity in the air Saturday on campus as the Princeton football team prepared to host rival Penn in the final game of the season.

The Tigers were on the cusp of an undefeated season and claiming the Ivy League championship.

Saturday was also a special day for the Rare Disease Community inside Princeton Stadium.

The leaders of the Uplifting Athletes chapters at each university picked this match-up to serve as a Rare Disease Awareness Game to show their ongoing support for the rare disease cause.

Players from each team wore Uplifting Athletes stickers on their helmets and pulled on blue #WeTackleRare wristbands in a show of unified support for the Rare Disease Community each chapter champions.

And with the help of Uplifting Athletes Executive Director Rob Long and Director Sports Impact Brett Brackett, the Masciantonio family from The For The Love Of Grace Foundation was able to attend their first college football game together.

It was a busy Saturday in Princeton, New Jersey.

Gianna Masciantonio is a 4-year-old rare disease patient who is diagnosed with a rare brain tumor. Her parents, Joe and Kristen, started the For The Love Of Grace Foundation in honor of their daughter.

“We wanted to help others in the same situation,” Kristen Masciantonio said. “We give 100 percent of what we raise to research and to help families. We don’t have any overhead. I mean, who can you not help other families, right?”

In between the first and second quarters Gianna, her older brother Dominic, Joe and Kristen and Uplifting Athletes staff were recognized on the field as an extension of the hard work Princeton and Penn football programs put forth to support the Rare Disease Community.

“People just don’t fully understand what families like ours and others like ours go through,” Kristen Masciantonio said. “This is an important part of the support we need to feel. Support is important.”

Princeton went on to beat Penn to complete their perfect season and hoist the trophy as Ivy League champions. On the field they are competitors, but off the field the Tigers and Quakers football student-athletes share a common bond of shining a spotlight on the Rare Disease Community.

Thank you to the athletic departments at Princeton and Penn for supporting the football student-athletes of each chapter to make this a special day that extends well beyond 60 minutes of football.

 

 

Princeton Tigers complete perfect season highlights Week 12 Chapter Update


PRINCETON GRAPHICPrinceton finished off its first perfect season since 1964 and earned the 2018 Ivy League title with a victory over rival Penn in front of nearly 8,000 fans.

The victory clinched the fourth outright Ivy League title in program history, and the first since 1995. It was also the program’s second 7-0 Ivy season since league play officially began in 1956.

Princeton raced out to a 21-0 lead before Penn battled back with a score just before the half and on its opening possession of the third quarter to slice the deficit to 21-14.

The second touchdown of the game made the 2018 Princeton Tigers the highest scoring offense in Ivy League history. Princeton finished the season with 470 points, surpassing the previous record of 437 points, set by the 2013 Tigers Ivy League championship team.

Teams from the Ivy League are not eligible for the NCAA FCS playoffs. Princeton ended the regular season as the second-ranked scoring offense, the third-ranked total offense and the sixth-ranked rushing offense in the FCS.

Princeton QB John Lovett put up nearly 400 yards of offense and set an Ivy League record to earn the Uplifting Athletes Rare Performance of the Week honor

Colgate: For the first time since 2003, the Raiders will host a home playoff game. Colgate dropped its regular-season finale with now nationally ranked Army by two touchdowns. But the 9-1 Patriot League champion Raiders earned a No. 8 seed from the NCAA FCS football playoff committee. Colgate has a bye in the first round and will host the winner of James Madison vs. Delaware at Andy Kerr Stadium on December 1.

Notre Dame: The Fighting Irish took a huge step toward securing a berth in the College Football Playoff behind a defense that stymied No. 12 Syracuse at Yankee Stadium. Notre Dame limited an Orange offense that had been averaging nearly 500 yards and 44 points a game to less than 250 yards and a late field goal. The Irish D posted three interceptions, six sacks and had 11 tackles for a loss. Notre Dame is 11-0 and closes the regular season with a road game at USC.

Clemson: Despite a slow start offensively, the undefeated Tigers continued their march toward another ACC title and berth in the College Football Playoff with a victory over Duke. Clemson fell behind 6-0, then rallied with a pair of touchdowns in the second and third quarters. Running back Travis Etienne put the game away with touchdown runs of 27 and 29 yards in the third quarter.

Davidson: With four straight losses by a touchdown or less, the Wildcats found themselves in another tight battle with Butler down the stretch. Of those four losses, one game in double overtime and the other three Davidson had the lead with 4:00 to play. The Wildcats defense came up huge this time, stopping Butler four times from inside the 5-yard-line in the final minute for an epic goal-line stand. The victory allowed Davidson to finish 6-5 overall and post its first winning season since 2007.

Northwestern: The Big Ten West champion Wildcats used three rushing touchdowns to subdue Minnesota and in the process earned road victory No. 8 in a row for Northwestern. The Wildcats also improved to 7-1 in conference play for the first time since 1996.

Penn State: Freshman tight end Pat Friermuth caught a pair of touchdown passes and the Nittany Lions defense came up with three takeaways to power No. 15 PSU past Rutgers. The win was No. 30 for senior quarterback Trace McSorley, giving him the school record for victories. In addition, McSorley became just third quarterback in Big Ten history to surpass 100 career touchdowns responsible for, joining Drew Brees (Purdue) and J.T. Barrett (Ohio State) as the only Big Ten quarterbacks to accomplish the feat.

Lehigh: In the 154th meeting with rival Lafayette, the Mountain Hawks used a fast start to grab a 17-0 lead before the game was nine minutes old and never looked back. The Lehigh defense limited Lafayette to 234 total yards and its fewest points since beating Georgetown 35-3 in 2016.

NC State: The Wolfpack scored a season-high 52 points and put up the most points in an ACC road game since they scored 55 at Duke in 2001. NC State wide receiver Kelvin Harmon had seven catches for 100 yards and touchdown. Harmon, a junior from New Jersey, went over 1,000 yards receiving for the second straight season. He is only the third player in school history (Torry Holt, Jerricho Cotchery) to eclipse 1,000 yards receiving twice in his career.

Fordham: Led by defense that improved as the season went along, the Rams closed out the season with a road victory. Antonio Jackson picked off a pass for Fordham and returned it 70 yards for a touchdown just before halftime to put the Rams ahead for good in this low-scoring affair.

Florida State: The Seminoles snapped a three-game losing streak in dramatic fashion by using a big play in the final 2 minutes to rally past No. 22 Boston College at home. FSU quarterback Deondre Francois hit Tamorrion Terry with a 74-yard catch-and-run touchdown with 1:49 to play to put the Seminoles in front for good. This was the Seminoles first win over a ranked opponent since the 2016 Orange Bowl victory against Michigan.

Chapter Scoreboard Week 12 v.'18