Chapter Update: Florida State pulls off big-time upset and three other chapter schools pick up Week 6 wins


For the first time in more than a half century an unranked Florida State team beat a top-five ranked team in Doak Campbell Stadium with a narrow victory over North Carolina. The last time it happened was October 16, 1965 when the Seminoles recorded a 10-3 win over No. 5 Georgia.

The upset provided Mike Norvell his first ACC victory as the Florida State head coach. The Seminoles’ last victory over a top-five team came in 2014 when they edged Notre Dame.

Quarterback Jordan Travis completed only eight passes, but finished with 191 yards through the air to average nearly 24 yard per completion. He also rushed 16 times for 107 yards and a pair of touchdowns. Florida State also blocked a pair of punts in the first quarter and now leads the nation in blocked kicks with five.

Florida State Chapter President, linebacker DeCalon Brooks, scooped up a blocked punt on the first drive of the game and returned it 18 yards to set up FSU’s first touchdown. Fellow FSU Chapter Leader, wide receiver Keyshawn Helton, had two catches for 43 yards.

Clemson: The Tigers scored a school record 52 points in the first half to extend its road winning streak to 14 games with a victory over fellow Uplifting Athletes Chapter Georgia Tech. The previous mark for points in a half was 49 against Wake Forest in 1981. Clemson quarterback Trevor Lawrence became only the second quarterback in school history to throw for 400 yards and five touchdowns in a road game. Lawrence joins Tajh Boyd, who did it twice – once in 2012 and another time in 2013. Clemson Chapter President, punter Will Spiers, averaged 50.7 yards on three punts. The senior also made a late cameo appearance at quarterback for the Tigers, completing 2 of 3 passes for 13 yards.

Notre Dame: Sophomore running back Kyren Williams posted his third consecutive 100-yard game to help the No. 4 ranked Fighting Irish edge Louisville to remain unbeaten. Williams finished with 127 yards on 25 carries. Louisville came into this contest averaging nearly 425 yards a game offensively, but an Irish defense that surrendered fewer than 12 points a game on average held the Cardinals to a season-low 219 yards and seven points. Notre Dame Chapter President, linebacker Drew White, finished with three tackles including a tackle for a loss.

NC State: The Wolfpack trailed by six at halftime, but used a strong defensive effort in the second half to roll past Duke at home. NC State outscored the Blue Devils 17-0 in the second half. Redshirt sophomore linebacker Payton Wilson had a pair of interceptions to become the first Wolfpack linebacker with a pair of interceptions in the same contest since Jerod Fernanez picked off No. 1 ranked Florida State twice in the 2014 matchup. Wilson also finished with a team-high 19 tackles in the victory over Duke, the most tackles for a Pack player since Earl Wolff had 19 vs. Clemson in 2012.

Syracuse: Back-up quarterback Rex Culpepper, playing in place of injured starter Tommy DeVito, threw three touchdown passes and running back Sean Tucker notched his second 100-yard game of the season in a home loss to Liberty. Former Syracuse Chapter Leader, punter Nolan Cooney, averaged 46.5 yards per punt and he dropped all six of his punts inside the 20-yard line.

Joshua Eargle, the 2019 Uplifting Athletes Rare Disease Champion, stood in for Kansas’ Les Miles Saturday at West Virginia as the Jayhawks acting head coach. Miles was unable to make the trip to Morgantown after testing positive for COVID-19. Eargle won the award for his inspiring efforts to advance support and awareness for his daughter’s battle with an ultra rare disease.
Each week during the college football season we will feature a player who is an officer for an Uplifting Athletes Chapter. This week we feature Western Michigan linebacker and Chapter President Zaire Barnes.

Chapter Update: Notre Dame pushes past Florida State and three other teams nail down Week 5 victories


Playing for the first time in three weeks, No. 5 ranked Notre Dame used a balanced offensive attack to push past Florida State in a match-up of Uplifting Athletes chapter schools.

Sophomore running back Kyren Williams went for 185 yards and two touchdowns on 19 carries and freshman Chris Tyree kicked in 103 on 11 carries with a touchdown. Combined the duo averaged 9.6 yards per carry.  Wide receiver Javon McKinley also had a 100-yard day, catching five passes for 107 yards. The last time Notre Dame had a pair of 100-yard rushers and a 100-yard receiver in a single game was 2015 against Stanford.

Florida State fell behind 14-3 early but counter punched the entire game, grabbing a 17-14 lead late in the first quarter. Seminoles quarterback Jordan Travis had 300 total yards in his first start (204 passing, 96 rushing) with a pair of touchdowns.

Notre Dame Chapter leaders, linebackers Drew White and JD Bertrand, each had three tackles for the Fighting Irish. Former chapter leader, tight end Brock Wright, had two catches for 10 yards.

Clemson: The No. 1 ranked Tigers extended their home winning streak to 25 in handing No. 13 Miami its first loss of the season. RB Travis Etienne had 222 total yards (149 rushing, 73 receiving) and scored a pair of rushing touchdowns. Etienne extended his school record for 100-yard rushing games to 19 and became the first non-kicker in ACC history to score 400 points. QB Trevor Lawrence added 292 yards passing with three touchdowns and the Clemson defense produced three interceptions and five sacks. Clemson Chapter President Will Spiers punted only three times but averaged a stellar 52.7 yards per kick and Vice President Jack Maddox handled all the long snapper duties for the Tigers.

Georgia Tech: After falling behind 21-7 late in the second quarter Friday night at Bobby Dodd Stadium, the Yellow Jackets went on a tear and overwhelmed Louisville to even their record at 2-2. Wide receiver Ahmarean Brown’s touchdown pass in the final minute ignited the comeback. Brown’s nine-yard toss to Jalen Camp was the first touchdown pass by a Georgia Tech wide receiver since 2003. The Yellow Jackets outscored the Cardinals 32-6 in the second half. Georgia Tech Chapter leaders Jake DeFoor and Zach Quinney started at left guard and left tackle, respectively.

NC State: The Wolfpack picked up their second road victory in as many weeks with a victory at Virginia. NC State scored 24 unanswered first-half points to grab control. QB Devin Leary threw a pair of first-quarter touchdown passes and RB Zonovan Knight added a 35-yard TD scamper to put NC State in control. The Wolfpack defense made a pair of goal-line stands, stopping UVA at the 1-yard line twice. NC State Chapter Vice President Dylan Autenrieth started at tight end and President Thomas Ruocchio saw snaps on special teams and at tight end.

Syracuse: Four forced turnovers by the Orange defense was not enough to overcome Duke’s strong balanced offense that produced nearly 650 yards of total offense. Syracuse Chapter President Aaron Bolinsky started at long snapper and former chapter leader Nolan Cooney averaged 46.9 yards per punt with half of his eight kicks traveling 50-plus yards including a pair downed inside the 20-yard-line.

Each week during the college football season we will feature a player who is an officer for an Uplifting Athletes Chapter. This week we feature Davidson quarterback and Chapter President Tyler Phelps.

Chapter Update: NC State wins wild 2020 season opener and two other teams notch Week 2 victories


Powered by running backs Ricky Person Jr. and Zonovan Knight, NC State won its 2020 season opener in a wild back-and-forth affair with Wake Forest. Person and Knight combined for 196 yards on the ground with three touchdowns.

Person scored the winning touchdown on a 3-yard run late in the fourth quarter and finished with 99 yards and two scores. He also threw a touchdown pass on a halfback option.

Wake Forest, which rallied from 14-point deficits three times, had one final shot to win it. Back-to-back sacks by Vi Jones and Daniel Joseph sealed the Wolfpack victory.

Syracuse: For the second consecutive week the Orange defense gave Syracuse a chance on the road, this week against No. 25 Pitt. Only problem was the Panthers defense was just as strong. The Orange defense produced a pair of turnovers, had eight tackles for a loss, three sacks and held Pitt to fewer than 350 total yards. But the Orange offense managed only 171 total yards and was shut out in the second half of a 14-10 game at intermission. Former Syracuse Chapter leader and punter Nolan Cooney continues to shine. The senior averaged 43.6 yards per punt, registered one of 50-plus yards and dropped two of his six kicks inside the 20. 

Notre Dame: The No. 7 ranked Fighting Irish extended its home winning streak to a modern program record 20 games behind six rushing touchdowns from four different players. Notre Dame scored on its first four possessions to seize a 35-0 halftime cushion. Quarterback Ian Book had three rushing touchdowns the first half to become the first quarterback in modern school history with three rushing TD’s in a half. Notre Dame Chapter Vice President JD Bertrand recorded his first career tackle in the second quarter. The sophomore linebacker finished with three tackles.

Clemson: The No. 1 ranked Tigers claimed their home opener with ease and in the process set an Atlantic Coast Conference (ACC) record with their 31st consecutive regular season victory to surpass the 2013-15 Florida State Seminoles. Clemson scored on its first seven possessions, led 28-0 after one quarter and 49-0 at halftime. Fast starts are a trademark of this offense guided by quarterback Trevor Lawrence. Since the start of the 2019 season, the Tigers have now outscored the opposition 219-34 in the first quarter. Clemson Chapter President Will Spiers averaged 46 yards per punt and buried two of his three kicks inside the 20.

Georgia Tech: Offense wasn’t a problem for the Yellow Jackets in their home opener at The Flats as Georgia Tech rolled up nearly 500 total yards. Five turnovers, the most in a game for the Jackets since 2013, was simply too much to overcome against the equally high-powered No. 14 ranked UCF offense. True freshman Jahmyr Gibbs amassed 219 all-purpose yards and scored twice. Gibbs had a rushing and receiving touchdown and set up Tech’s first score with a 75-yard return on the opening kickoff.

Each week during the college football season we will feature a player who is an officer for an Uplifting Athletes Chapter. This week we feature Notre Dame Linebacker and Chapter Vice President and  JD Bertrand.

Beyond The Trophy 2020: Get to know Notre Dame Chapter Vice President and linebacker JD Bertrand


Each week during the college football season we will feature a player who is an officer for an Uplifting Athletes Chapter for our Beyond the Trophy series.

Name: JD Bertrand

College: University of Notre Dame

Height, weight, class, position: 6-1, 228 pounds, sophomore, linebacker

High School: Blessed Trinity High School in Alpharetta, Georgia

About JD: The linebacker saw action in four games as a true freshman on special teams in 2019 after heading to Notre Dame as one of the Top 20 linebackers in the country in his recruiting class. JD made his college debut at home against Bowling Green. Part of a team that won back-to-back Georgia Class AAAA State Championships in 2017 and 2018, JD became a leader for the Notre Dame Chapter after one season and campus and attended the 2020 Uplifting Athletes Leadership Development Conference.

What is your most memorable experience as a college football player?

BERTRAND: The first time doing the Notre Dame walk and running out onto the field. 

What drove you to get involved with Uplifting Athletes?

BERTRAND: A lot of the older guys on the team spoke highly of the organization and I was interested in finding something where I could give back to others.

What have you learned from your experience with Uplifting Athletes?

BERTRAND: I learned how much can be done if the money raised is used well.

What advice would you share with someone in high school looking to play college football?

BERTRAND: Don’t worry about recruiting. Just focus on your game and developing yourself. If you do that, then coaches will come.

Who is your favorite NFL player and why?

BERTRAND: Former Carolina Panthers linebacker Luke Kuechly because he has such a strong mental knowledge of the game.

If you could have lunch with any one person (dead or alive), who would you choose and why?

BERTRAND: I would take either Tim Grover or David Goggins to hear their advice and to pick their brain.

JD ON THE HOT SEAT

What is your perfect pizza?

BERTRAND: Cheese with veggies

All time favorite movie?

BERTRAND: Lone Survivor

What is your go-to fast food restaurant?

BERTRAND: Chipotle

Favorite sports team (any sport)?

BERTRAND: Atlanta Falcons

What is the most used app on your phone?

BERTRAND: Snapchat

Chapter Update: Georgia Tech rallies past Florida State and two other teams post Week 1 victories


Georgia Tech overcame a tough first half that included two interceptions and a pair of blocked field goals to rally from 10 points down to win its season opener on the road against fellow Uplifting Athletes Chapter Florida State.

True freshman quarterback Jeff Sims accounted for 341 total yards in his first start and Jude Kelly drilled a 32-yard field goal midway through the fourth quarter to win it for the Yellow Jackets.

Georgia Tech’s defense surrendered a touchdown on the opening drive of the game before slamming the door by limiting the Seminoles offense to only two field goals the rest of the way.

Clemson: A school record 18th career 100-yard rushing game by running back Travis Etienne along with a stellar outing by quarterback Trevor Lawrence, who threw for 351 yards and scored a pair of rushing touchdowns, powered the No. 1 ranked Tigers to a road victory at Wake Forest. Clemson Chapter leader Will Spiers averaged 42.8 yards on four punts including a 56-yard bomb. The Tigers’ defense registered six sacks and 11 tackles for a loss.

Notre Dame: Sophomore running back Kyren Williams, making his first career start, torched visiting Duke for 205 total yards and a pair of touchdowns as Notre Dame recorded its first ever conference victory. Williams became the first Irish player in the last 25 years to record 90-plus yards rushing and receiving in the same game. Notre Dame Chapter leader and starting linebacker Drew White recorded five tackles.

Syracuse: Led by three interceptions, two by linebacker Mikel Jones, the Orange defense kept Syracuse in the game for three quarters on the road against No. 18 North Carolina. The Orange trailed 10-6 entering the final 15 minutes before the Tar Heels rattled off touchdowns on three consecutive possessions to finish off the determined Orange. Former Syracuse Chapter leader Nolan Cooney drilled four of his nine punts more than 50 yards and averaged a stellar 47.8 yards per kick.

Each week during the college football season we will feature a player who is an officer for an Uplifting Athletes Chapter. This week we present Colgate quarterback and Chapter President Jake Froschauer

Why support rare now?


Nearly 30 million Americans are living with a rare disease and  COVID-19 continues to present a myriad of challenges that is not only impacting the patients but their families and caregivers as well.

At the top of the list is reduced access to vital medical care which, in turn, has exacerbated already existing challenges. Among those already existing challenges include an accurate diagnosis of a complex disease, limited treatment protocol options, financial struggles, absence of hope and mental fatigue for patients, families and caregivers. 

“I don’t think you need to have a rare disease to have had all of this impact you mentally,” said Dr. Justin Hopkin, the father of a son with a rare disease and a rare disease advocate. “Managing the mental aspect of all this has been difficult for everybody. Finances, jobs, social issues … all those things have weighed heavily on most of us, but we know it’s been especially hard on those living with a rare disease.”

The isolation some Americans are feeling as we navigate the obstacle course of this pandemic is how some rare disease patients feel everyday. 

Since March, medical research on diseases other than COVID-19 has taken a huge hit. There have been countless research studies abandoned, suspended or postponed. 

Much is still unanswered about the ultimate impact the pandemic will have on clinical trials, too. That’s because it is unclear how many of these studies will eventually restart and how long it will be before they begin again.

Clinical trials play a critical role physically and mentally for rare disease patients. They show researchers and doctors what does and doesn’t work, and are a critical vehicle for rare disease patients to receive or obtain life altering therapy.

A clinical trial being delayed, interrupted or canceled can be a tipping point for a rare disease patient . They don’t have the luxury in most cases of multiple clinical trials. And the delay, interruption or cancelation of that trial jeopardizes any hope they might have had and could even be life threatening.

All this is going to lead to a healthcare system already pushed to its extreme limits by this pandemic becoming backed up and slowed even more. And it will directly and adversely impact a Rare Disease Community that faces an uphill climb under optimal conditions.

“Like everyone else, what we are hearing from the patients in our community has been tough,” said Kathi Luis, a rare disease advocate. “There was a lot of hopelessness, without their rehab, medication, treatments, clinical trials delayed or canceled … they didn’t have any hope. They are really defeated.”

In April, the National Organization For Rare Diseases (NORD) reached out to patients to gauge the best way to guide support and help for the Rare Disease Community.

Nearly 800 people responded to the survey from NORD’s research team and the results were made public last month.

95 percent of the respondents said they have been impacted at a cost to both their immediate and long-term health and well-being. Nearly three-quarters have had a medical appointment canceled and, of those, 65 percent were offered an alternative appointment via phone or video. 69 percent of the respondents have concerns about medication and medical supply shortages.

“Treating rare and medically complex cases like mine takes multimodal approaches. Remove one piece of the puzzle and the care patients receive results in sub-optimal outcomes. COVID-19 further exposed a glaring problem in the healthcare system by asking us what defines essential medical treatments,” said Marni Cartelli, a rare disease patient. “What if a treatment on its face doesn’t keep someone alive but is supplemental to one that does? Also, we must ask ourselves, is keeping someone alive the only essential medical service? What about keeping someone’s ability to feed themselves? These are all questions I ask myself every single day but society only had to ask itself in this pandemic.”

The time for action to support the Rare Disease Community is now. As we all adjust to what is the most recent new normal, the mental fatigue associated with the unknown for rare disease patients continues.

Uplifting Athletes is uniquely positioned to inspire hope in the Rare Disease Community. The 7,000 Mile Challenge is a way for YOU to get active and rally support for the rare diseases this summer.

Inaugural 7,000 Mile Challenge to support the Rare Disease Community set for July 17-26


Uplifting Athletes is proud to announce the inaugural 7,000 Mile Challenge – a 10-day event starting July 17th that will bring focus and attention to the more than 7,000 known rare diseases.

People affected by a rare disease are fighting against a finite clock that didn’t stop because of COVID-19. We’re letting the Rare Disease Community know that we won’t stop fighting for them!

“We are rallying our extensive network behind one initiative this summer so that we can continue to support our friends and partners in the Rare Disease Community,” Uplifting Athletes Executive Director Rob Long said. “Our team has worked hard to find a way to afford everyone the opportunity to take action and help the Rare Disease Community.”

It does not matter whether you are a casual walker, an avid runner, swimmer or roll on wheels of any kind, you can help make a difference for the Rare Disease Community. To participate in the 7,000-Mile challenge join an existing team, create a new team for you and others, or participate as an individual.  

Track and add your mileage to the collective Uplifting Athletes total using any single day or combination of days throughout the 10-day challenge. You can collect pledges for every mile you contribute to the challenge to support the mission of Uplifting Athletes. 

Join Uplifting Athletes wherever you are July 17th to 26th and rally your support for the Rare Disease Community through activity, donation or both!

To pre-register and start helping Uplifting Athletes Tackle Rare Diseases, visit upliftingathletes.org. Now is a time for action so no one in the Rare Disease Community lives without hope.

Proceeds from the 7,000 Mile Challenge support the mission of Uplifting Athletes and its charitable programs: Rare Disease Awareness, Rare Disease Research, Uplifting Leaders and Uplifting Experiences.

Any questions about the 7,000 Mile Challenge, please send an email to info@uplitingathletes.org.

Uplifting Athletes cancels all annual Lift For Life events for 2020


COVID-19 has led to many adjustments of the college athletic schedule. The football student-athletes and programs Uplifting Athletes work with face a condensed time frame to prepare for the upcoming season under heightened safety precautions.

In order to avoid any additional pressure, Uplifting Athletes made the decision to cancel all our annual Lift For Life events this summer.

On behalf of the Rare Disease Community Uplifting Athletes serves, thank you to everyone who has supported Lift For Life in the past. We look forward to a full Lift For Life schedule in 2021.

Lift For Life is the signature event for universities across the country that are part of the Uplifting Athletes nationwide network of chapters.

It is more important than ever for Uplifting Athletes to be there for our friends and family affected by Rare Diseases. Please stay tuned for a big announcement on Monday June 22 on how you can help rally support for the Rare Disease Community this summer.

21 NFL Prospects join 2020 Reps For Rare Diseases campaign during NFL Combine


For the sixth consecutive year, Uplifting Athletes is empowering NFL prospects with the opportunity to use the NFL Combine as a platform to give back by raising funds and awareness in support of the Rare Disease Community.

Reps For Rare Diseases has been used as a way for athletes to give back at a pivotal point in their quest to play at the highest level as they put their skills on display for NFL teams.

Since its inception in 2015, more than 100 players have participated in this campaign through either the NFL Combine or NFL Pro Day workouts.

This year Uplifting Athletes currently has 21 players who chose to participate in Reps For Rare Diseases 2020 at the NFL Combine including: Grayland Arnold, JaMycal Hasty, Denzel Mims, Clay Johnston, James Lynch and Chris Miller from Baylor, Davion Taylor from Colorado, Jalen Elliott, Alohi Gilman, Tony Jones Jr., Cole Kmet, Chris Finke and Julian Okwara from Notre Dame, Juwan Johnson from Oregon, Rob Windsor from Penn State, Kevin Davidson from Princeton, Sterling Hofrichter and Kendall Coleman from Syracuse, Reggie Robinson and Trevis Gipson from Tulsa and Shaun Bradley from Temple.

“During Combine and Pro Day training, so much time and energy is focused by these young men on achieving their dreams of playing in the NFL,” former NFL player and Uplifting Athletes’ Chapter Success Manager Levi Norwood said. “It is amazing to see so many NFL hopefuls realize, especially during this tiring and grueling process, how impactful their platform can be. We are honored they chose to stand alongside Uplifting Athletes and the Rare Disease Community.” 

Fans and supporters can pledge towards the performance of any one of our NFL Combine participants this year and help Uplifting Athletes tackle rare diseases.

Visit the Uplifting Athletes Reps For Rare Diseases 2020 team landing page, choose your favorite player and make your pledge today.

Horizon Therapeutics plc and Uplifting Athletes announced a new partnership for the 2020 Reps for Rare Diseases campaign. Horizon will match donations up to $35,000 through its #RAREis program, which is dedicated to providing individuals living with rare disease and families access to resources that connect, inform and educate as they navigate their daily lives.

“Thank you to all the athletes participating in Reps For Rare Diseases and good luck as you continue your football journey,” Uplifting Athletes Director of Sports Impact and NFL veteran Brett Brackett said. “This group of athletes displays the empathy and character that helps them stand out amongst their peers. Any NFL team would be lucky to have one of these men representing their organization.”

The proceeds from the 2020 Reps For Rare Diseases campaign support the mission of Uplifting Athletes and its charitable programs: Rare Disease Awareness, Rare Disease Research, Uplifting Experiences and Uplifting Leaders.

39 Uplifting Athletes Chapter Leaders put through paces in Atlanta during 11th annual Leadership Development Conference


The cornerstone of the Uplifting Leaders program is our network of Chapters on campuses across the country led by college football student-athletes.

This past weekend, 39 leaders from 20 schools gathered in Atlanta for a high impact and fast paced weekend of learning and development during our 11th annual Uplifting Athletes Leadership Development Conference.

The 2020 conference provided an opportunity for our Chapter leadership to develop relationships that stretch beyond the football field, to absorb enhanced mission and vision insight based on Uplifting Athletes’ four programs – Rare Disease Awareness, Rare Disease Research, Uplifting Experiences and Uplifting Leaders – and to plot a chapter strategy for 2020.

“The difference for me this year was it’s a new group of guys mostly, but you establish similar quality of relationships,” said Clemson Chapter leader and Tigers’ long snapper Jack Maddox, who was attending his second conference. “I have a year of experience now, so I know more about what’s going on. I’m not overwhelmed as much and I know what we can and can’t do at our chapter. It’s such a valuable weekend.”

Following a meet-and-greet dinner Friday night, the conference kicked off Saturday with a full day of programming. Four breakout sessions led by Uplifting Athletes staff were followed by an “entering the real world” question-and-answer session with former college athletes.

The highlight of Saturday was the Uplifting Experience at the College Football Hall of Fame where 24 rare disease patients, caregivers and families were connected with the Chapter leaders to spend a couple hours experiencing the Hall of Fame together.

“I loved that the athletes had an opportunity to meet individuals with rare diseases outside of a hospital setting,” said Carol Unger, whose 32-year-old son Matthew is diagnosed with the ultra rare disease WAGR Syndrome. “I feel it is important to note that our children grow up, although some may still be at the maturity level of a 7 or 8 year old, and cherish those opportunities to meet with folks from the outside world.”

The first day of the conference closed out with a work session on three of Uplifting Athletes’ main events – Lift For Life, Reps For Rare Diseases and Touchdown Pledge Drive.

“Since Penn State is such an established chapter, my journey here is to learn what else can we do next to help support the Rare Disease Community,” said Penn State Chapter leader and long snapper Chris Stoll, who is in line to be the next PSU Chapter President taking over for quarterback Sean Clifford.

“I’m very excited to be more involved at another level. Sean did a great job and put a lot into it. But he’s our starting quarterback now and that’s a big job. I’m pumped to be here again and to meet so many guys who have passion for the rare disease cause and for using their platform to make a difference. And I’m very excited to get more involved at the next level.”

Sunday started with Dr. David Fajgenbaum, a former Uplifting Athletes Young Investigator Draft grant recipient, founder of the Castleman Disease Collaborative Network and rare disease research pioneer, sharing his story via a live video conference.

The conference wrapped up with some additional highlights of Uplifting Athletes’ programming that is available to support the rare disease cause and a work session to kick off 2020 at the chapter level.

A special thank you to all our sponsors and supporters who made this conference possible, Deloitte, Sanofi Genzyme, Jean Campbell and JFC Consulting and the College Football Hall of Fame. With your help, these young men are making a difference in the Rare Disease Community.