Seven chapters make for a busy and successful Spring Lift For Life schedule


This was a busy spring with seven chapters holding Lift For Life events in support of Uplifting Athletes and its mission to inspire the Rare Disease Community with hope through the power of sport.

Penn, Stony Brook, Saint Francis, Davidson, Lehigh, Marist and Princeton, all FCS college football programs, recently held their annual Lift For Life events.

2019 Penn Chapter Lift For Life

For the Lehigh and Marist Chapters, 2019 was their inaugural Lift For Life as part of the Uplifting Athletes team.

“Starting an Uplifting Athletes chapter at Marist is an opportunity I couldn’t pass up on. I’ve always wanted to get involved in the community and help those who need it and with Uplifting Athletes I believe that’s possible,” said Red Foxes safety and Marist Chapter founder Paul Olivett. “On behalf of Marist and the football team, we look forward to being a part of the many college teams tackling rare diseases.”

Lift For Life is the signature fundraising event of the Uplifting Athletes nationwide network of chapters led by college football student-athletes.

2019 Lehigh Chapter Lift For Life

Lift For Life is unique at each university campus, but the driving force behind the event is the same for all our chapters nationwide. Lift For Life is an opportunity for teams to take a regular strength and conditioning workout and use it to raise money and awareness for the Rare Disease Community.

The Davidson Chapter reached a milestone this year when it became only the fourth Uplifting Athletes Chapter to raise more than $10,000 in each of its first two Lift For Life events joining Penn State, Boston College and Notre Dame in rare fundraising air.

“It’s been incredible to see the development and growth of our Uplifting Athletes Chapter at Davidson College,” Davidson Chapter leaders and co-founders George Hatalowich and Kevin Stipe said. “Our success is truly a testament to the players, coaches, and athletic department that bought into the organization and our chapter’s goals.

“We are extremely proud to be a part of Davidson’s Chapter and we can’t thank the Uplifting Athletes organization enough for their continuous support and guidance throughout this entire process.”

2019 Davidson Chapter Lift For Life

The seven events to kick off the 2019 Lift For Life schedule this spring raised more than $50,000 to support the mission of Uplifting Athletes and its charitable programs: Rare Disease Awareness, Rare Disease Research, Uplifting Experiences and Uplifting Leaders.

“It is an honor to be able to use our platform to help raise awareness and support the Rare Disease Community through Uplifting Athletes,” Saint Francis Chapter President Nick Rinella said. “We are all proud to be part of a team that is working so hard to tackle rare diseases.”

Today, the challenges faced by the Rare Disease Community are bigger than any one individual, team or organization can tackle alone. Each chapter is part of the nationwide network of teams that are uniquely positioned to educate and engage their local community to shine a spotlight on the rare disease cause.

Lift For Life will continue throughout the summer with the FBS schools kicking their offseason training into high gear along with a couple FCS schools that opted for summer events instead of the spring.

“Uplifting Athletes has given me a humbling and incredible opportunity to help give back to the Rare Disease Community,” Princeton Chapter President and offensive lineman Luke Aschenbrand said. “Meeting rare disease patients who appreciate the effort we put in and are thankful for the outreach of their message makes what we do worth it.

2019 Princeton Chapter Lift For Life

Five Chapters use annual spring game to raise awareness for Rare Disease Community


There are many ways the Uplifting Athletes nationwide network of chapter’s use their platform to inspire the Rare Disease Community.

Shining a spotlight on the more than 30 million Americans affected by rare diseases is part of each chapter’s mission.

Five years ago, the Penn State Chapter started raising awareness by wearing Uplifting Athletes stickers on their helmets and patches on their Nittany Lions jerseys for their annual Blue-White Game.

Over the years, Maryland, Princeton and Stony Brook have each at one time displayed the helmet sticker as part of their spring game to raise awareness.

This spring five teams, Penn State, Lehigh, Davidson, Saint Francis and Syracuse, committed to highlighting the rare disease cause by putting an Uplifting Athletes sticker on its helmets at their respective spring games.

The challenges faced by the Rare Disease Community are bigger than any one individual, team or organization can tackle alone. Our nationwide network of chapters, run by college football student-athletes, take pride in the opportunity to shine a spotlight on rare diseases.

Thank you to the athletic departments at Davidson, Lehigh, Penn State, Saint Francis and Syracuse for supporting their football student-athletes and Uplifting Athletes by allowing their squads to recognize the Rare Disease Community as part of its 2019 spring football game.

Davidson Chapter announces annual Lift For Life to inspire Rare Disease Community set for April 25


The Davidson Chapter of Uplifting Athletes will hold its second annual Lift For Life to support the Rare Disease Community on Thursday, April 25th.

Lift For Life is the signature fundraising event for the Davidson Chapter of Uplifting Athletes. Davidson is a part of Uplifting Athletes’ nationwide network of chapters led by college football student-athletes.

Each chapter embraces the mission of Uplifting Athletes by using college football as a platform to inspire the Rare Disease Community with hope through the power of sport.

“In just a year, it’s been incredible to see the development and growth of our Uplifting Athletes chapter at Davidson College,” Davidson Chapter leaders George Hatalowich and Kevin Stipe said. “Our 2018 Lift for Life was a huge success and it was truly a testament to the players, coaches, and athletic department that bought into the organization and chapter’s goals.

“We are excited to again use our platform in this year’s Lift for Life to raise money and awareness for the Rare Disease Community. I’m extremely proud to be a part of Davidson’s chapter and I can’t thank the Uplifting Athletes organization enough for their continuous support and guidance throughout this entire process.

The 2019 Davidson Chapter Lift For Life will be a competition on the average number of 225-pound bench press competitions among the six fundraising teams. The event is private this year.

Fans and supporters can select any one of the six teams and make a pledge for the number of bench press repetitions that team averages. So find your favorite 2019 Davidson player on any of the six Wildcats’ Lift For Life teams and support them by visiting the Davidson Chapter 2019 fundraising site. You can also make a flat donation to any team.

The proceeds from our 2019 Lift For Life support the mission of Uplifting Athletes and its charitable programs: Rare Disease Awareness, Rare Disease Research, Uplifting Experiences and Uplifting Leaders.

Today, the challenges faced by the Rare Disease Community are bigger than any one individual, team or organization can tackle alone. The Davidson Chapter, along with a nationwide network of teams, is uniquely positioned to educate and engage the local community to shine a spotlight on rare diseases.

Uplifting Athletes was pleased to have Davidson College join the nationwide network of chapters led by college football student-athletes in 2018. The Davidson Chapter showed the character of their football program in its first year supporting the Rare Disease Community and earned the Best Newcomer Award for 2018.

Please support the Davidson Chapter and help the 2019 Wildcats reach their impressive $15,000 team Lift For Life goal.

Uplifting Athletes’ 10th Leadership Development Conference in Atlanta covered a lot of ground


The essential core of the Uplifting Leaders program is the college football student-athletes that steer our chapters at universities across the country.

This past weekend more than 40 individual leaders from 20 college football programs traveled to Atlanta for the 10th annual Leadership Development Conference.

The three-day conference was hosted by Uplifting Athletes, and run by Director of Sports Impact Brett Brackett, a former Penn State Chapter President who attended the inaugural conference in 2010.

“Uplifting Athletes is grateful to be engaged with such enthusiastic student-athletes motivated to leverage their platform for good,” Brackett said. “I am excited to see how this group of student-athletes takes the knowledge gained from the conference and uses the power of sport to inspire the Rare Disease Community with hope.”

Following a meet-and-greet team dinner Friday night, the conference kicked off Saturday morning with a full day of programming that was driven by Uplifting Athletes four program pillars – Uplifting Leaders, Uplifting Experiences, Rare Disease Awareness and Rare Disease Research.

Morning sessions covering the four programs were followed by a panel of former college football student-athletes sharing their stories and advice about making the transition from student-athlete to the professional world.

The lively and open discussion was spearheaded by panelists Pat Boyle, Drew Butler, Stephon Morris and Stephen Obeng-Agyapong.

“The conference was a great experience for me to learn more how to utilize my platform to impact the Rare Disease Community,” Penn State Chapter leader Sean Clifford said. “I am glad I had the opportunity to represent Penn State Football and grow as a leader.”

To kick off the afternoon, Uplifting Athletes Executive Director Rob Long shared his story about being a rare disease patient and how that shaped him to become a leader, advocate and difference maker for the Rare Disease Community.

Long’s hour-long presentation set the table for a tour of the College Football Hall of Fame and an Uplifting Experience where nearly 20 rare disease patients, caregivers and family members teamed up with the student-athletes.

“For me Leadership Development Conference 2019 was all about the people. You are surrounded with other college football players from all around the country and get to learn about their own connections with rare diseases and how much it affects us all,” Northwestern Chapter leader Joe Spivak said. “And then to be paired with a family going through the fight at the College Football Hall of Fame puts everything in that much more perspective.

“Those interactions, along with all the work with everyone from the Uplifting Athletes staff, showed me the true difference we can make in this community through the power of the sport we are all so blessed to be a part of.”

Gabe Low, a 17-year-old Hawaii native who was born with a rare genetic disorder, took center stage on Sunday to share his story about why he did the 3,500-mile Ride For Rare Diseases and talked about the impact of awareness created by using his platform.

The conference also featured sessions on Lift For Life and Touchdown Pledge Drive and next steps moving forward as these leaders prepare for 2019.

“If their attentiveness and commitment at the conference is any sign of what’s to come from this group of leaders … I believe 2019 could be something special,” Brackett said. “Their level of engagement leads me to believe we will see a high level of awareness and fundraising for the Rare Disease Community through Uplifting Athletes chapters across the country.”

Among the 20 schools that were represented in Atlanta, two of those are prospective Uplifting Athletes Chapters. Kent State and New Mexico had student-athletes attending for the first time.

Current Chapter leaders from Clemson, Colgate, Davidson, Florida State, Lehigh, NC State, Notre Dame, Penn State, Syracuse, Saint Francis, Penn, Northwestern, Maryland, Princeton, Stony Brook, Fordham and Western Michigan were also in attendance.

A special thank you to all our supporters who made this conference possible. With your help, these young men are making a difference in the Rare Disease Community.

Uplifting Athletes to welcome 40-plus college football student-athletes for 10th Leadership Development Conference in Atlanta


ldc 19 graphic

The bedrock of the Uplifting Leaders program at Uplifting Athletes is the college football student-athletes that guide our nationwide network of chapters.

These student-athletes already have the drive and passion to help others and that is why they chose to step up and become chapter leaders to help us serve the Rare Disease Community.

In order to help them become even stronger leaders and advocates, Uplifting Athletes will gather these college football student-athletes together in late January for three days of education, training and networking at the 2019 Leadership Development Conference in Atlanta.

This will be the 10th consecutive year Uplifting Athletes has put together a weekend of intense leadership development and relationship building for current and prospective chapter leaders.

“We are thrilled to host a fantastic group of student-athletes for a three-day conference focused on enhancing life skills, transferable skills recognition, and leadership development through Uplifting Athletes programming,” Uplifting Athletes Director of Sports Impact Brett Brackett said. “Our goal is to provide the student-athletes with the skills necessary to returned to campus empowered to make a positive impact on the Rare Disease Community.

This year 40 current football players from 20 universities across the country will travel to Atlanta on Friday, January 25 to kick off a busy weekend of engaging work sessions, networking and relationship building.

Among the 20 schools that will be represented in Atlanta, four of those are prospective Uplifting Athletes Chapters. Kent State and New Mexico have student-athletes attending for the first time.

Current Chapter leaders from Clemson, Colgate, Davidson, Florida State, Lehigh, NC State, Notre Dame, Penn State, Syracuse, Illinois, Saint Francis, Penn, Northwestern, Maryland, Princeton, Stony Brook, Fordham and Western Michigan will also be in attendance.

The 2019 Leadership Development Conference will kick off with a team meal Friday night prior to a full weekend agenda.

The conference content is developed and driven by the Uplifting Athletes staff, but will also feature a panel of former student-athletes answering questions about the transition to the professional world.

Included in the workshop sessions on Saturday and Sunday are an overview of Uplifting Athletes, Lift For Life and Touchdown Pledge Drive event planning and transferable life skills development.

The highlight of Saturday will be an Uplifting Experience for the student-athletes to interact with local Atlanta area rare disease patients.

We are very excited to bring this group together to learn from each other, to strategize together and to foster the sense of teamwork that inspires us all.

A successful 2018 Year In Review


HappyHolidays-UAMay your days be filled with Peace, Hope and Joy this Holiday Season!

On behalf of the 30 million Americans that comprise the Rare Disease Community, our staff and team of college football student-athletes thank you for your loyalty and support in 2018!  It has been a memorable year and we thank you for helping us achieve our mission.

Most recently, our team was able to be a part of an Uplifting Experience in Seattle. Former University of Illinois and current Seattle Seahawks wide receiver, Malik Turner, hosted a rare disease patient family for the day at the Seahawks facility. Turner continued to build on that relationship during the NFL My Cause My Cleats campaign by securing tickets for ADNP patient Tony Sermone and his family for the game. One of his cleats had the initials “T” and “S” on the back in Tony’s honor. After the game Malik was able to present the signed cleat he wore in the game to Tony.

MALIK YEAR END GRAPHIC

Without your support this type of Uplifting Experience would not be possible. Would you consider making a year-end donation to Uplifting Athletes?

2018 also featured plenty of new and exciting milestones for Uplifting Athletes including:

-New Uplifting Athletes chapters established at Western Michigan, Davidson and Lehigh.

-38 NFL prospects participated in our Reps For Rare Diseases campaign during their NFL Combine and individual pro day workouts.

-Held our inaugural Young Investigator Draft in August at Lincoln Financial Field in Philadelphia and scheduled our 2019 event for March 9th back at the home of the Philadelphia Eagles. The Young Investigator Draft is the result of our ongoing commitment to rare disease research. In 2018 we distributed six $10,000 grants to six individual researchers.

YID MAILCHIMP 1

-During the 2018 season, the first ever Rare Disease Awareness Games were held involving Uplifting Athletes Chapter match-ups between Syracuse vs. Western Michigan and Penn vs. Princeton. The chapters wore Uplifting Athletes helmets stickers, #WeTackleRare wristbands and recognized local rare disease patient families during a game break.

-We crowned Coach Joshua Eargle from Austin Peay State University as the 11th winner of the Rare Disease Champion Award – given to a leader in college football who has realized his or her potential to make a positive and lasting impact on the Rare Disease Community. We also enjoyed seeing our 10th winner of the award, Shaquem Griffin from UCF, selected in the fifth round of the 2018 NFL Draft by the Seattle Seahawks.

These are just a few of the 2018 highlights. We have bigger and bolder plans for 2019. As always, though, we need your help.

Please consider giving a gift to support the Rare Disease Community we serve. We can’t do any of this without you!

#WeTackleRare

Scott, Rob, Brett, John, Karen and Andy

 

 

Princeton Tigers complete perfect season highlights Week 12 Chapter Update


PRINCETON GRAPHICPrinceton finished off its first perfect season since 1964 and earned the 2018 Ivy League title with a victory over rival Penn in front of nearly 8,000 fans.

The victory clinched the fourth outright Ivy League title in program history, and the first since 1995. It was also the program’s second 7-0 Ivy season since league play officially began in 1956.

Princeton raced out to a 21-0 lead before Penn battled back with a score just before the half and on its opening possession of the third quarter to slice the deficit to 21-14.

The second touchdown of the game made the 2018 Princeton Tigers the highest scoring offense in Ivy League history. Princeton finished the season with 470 points, surpassing the previous record of 437 points, set by the 2013 Tigers Ivy League championship team.

Teams from the Ivy League are not eligible for the NCAA FCS playoffs. Princeton ended the regular season as the second-ranked scoring offense, the third-ranked total offense and the sixth-ranked rushing offense in the FCS.

Princeton QB John Lovett put up nearly 400 yards of offense and set an Ivy League record to earn the Uplifting Athletes Rare Performance of the Week honor

Colgate: For the first time since 2003, the Raiders will host a home playoff game. Colgate dropped its regular-season finale with now nationally ranked Army by two touchdowns. But the 9-1 Patriot League champion Raiders earned a No. 8 seed from the NCAA FCS football playoff committee. Colgate has a bye in the first round and will host the winner of James Madison vs. Delaware at Andy Kerr Stadium on December 1.

Notre Dame: The Fighting Irish took a huge step toward securing a berth in the College Football Playoff behind a defense that stymied No. 12 Syracuse at Yankee Stadium. Notre Dame limited an Orange offense that had been averaging nearly 500 yards and 44 points a game to less than 250 yards and a late field goal. The Irish D posted three interceptions, six sacks and had 11 tackles for a loss. Notre Dame is 11-0 and closes the regular season with a road game at USC.

Clemson: Despite a slow start offensively, the undefeated Tigers continued their march toward another ACC title and berth in the College Football Playoff with a victory over Duke. Clemson fell behind 6-0, then rallied with a pair of touchdowns in the second and third quarters. Running back Travis Etienne put the game away with touchdown runs of 27 and 29 yards in the third quarter.

Davidson: With four straight losses by a touchdown or less, the Wildcats found themselves in another tight battle with Butler down the stretch. Of those four losses, one game in double overtime and the other three Davidson had the lead with 4:00 to play. The Wildcats defense came up huge this time, stopping Butler four times from inside the 5-yard-line in the final minute for an epic goal-line stand. The victory allowed Davidson to finish 6-5 overall and post its first winning season since 2007.

Northwestern: The Big Ten West champion Wildcats used three rushing touchdowns to subdue Minnesota and in the process earned road victory No. 8 in a row for Northwestern. The Wildcats also improved to 7-1 in conference play for the first time since 1996.

Penn State: Freshman tight end Pat Friermuth caught a pair of touchdown passes and the Nittany Lions defense came up with three takeaways to power No. 15 PSU past Rutgers. The win was No. 30 for senior quarterback Trace McSorley, giving him the school record for victories. In addition, McSorley became just third quarterback in Big Ten history to surpass 100 career touchdowns responsible for, joining Drew Brees (Purdue) and J.T. Barrett (Ohio State) as the only Big Ten quarterbacks to accomplish the feat.

Lehigh: In the 154th meeting with rival Lafayette, the Mountain Hawks used a fast start to grab a 17-0 lead before the game was nine minutes old and never looked back. The Lehigh defense limited Lafayette to 234 total yards and its fewest points since beating Georgetown 35-3 in 2016.

NC State: The Wolfpack scored a season-high 52 points and put up the most points in an ACC road game since they scored 55 at Duke in 2001. NC State wide receiver Kelvin Harmon had seven catches for 100 yards and touchdown. Harmon, a junior from New Jersey, went over 1,000 yards receiving for the second straight season. He is only the third player in school history (Torry Holt, Jerricho Cotchery) to eclipse 1,000 yards receiving twice in his career.

Fordham: Led by defense that improved as the season went along, the Rams closed out the season with a road victory. Antonio Jackson picked off a pass for Fordham and returned it 70 yards for a touchdown just before halftime to put the Rams ahead for good in this low-scoring affair.

Florida State: The Seminoles snapped a three-game losing streak in dramatic fashion by using a big play in the final 2 minutes to rally past No. 22 Boston College at home. FSU quarterback Deondre Francois hit Tamorrion Terry with a 74-yard catch-and-run touchdown with 1:49 to play to put the Seminoles in front for good. This was the Seminoles first win over a ranked opponent since the 2016 Orange Bowl victory against Michigan.

Chapter Scoreboard Week 12 v.'18