Notre Dame Chapter welcomes Rare Disease patients, siblings and caregivers to Uplifting Experience bowling event


An important part of the Notre Dame Chapter heritage is the annual bowling event the Fighting Irish started in 2014.

This past weekend the Notre Dame Chapter used its event at the Strikes & Spares Event Center in Mishawaka, Indiana to host an Uplifting Experience for rare disease patients, families and caregivers.

More than 100 people – the largest attendance in the six-year history of the ND Chapter bowling event – packed the lanes for two hours of fun and inspiration.

“This was way bigger than anything we’ve ever had. It has been awesome to see how this event has grown and the impact the patients and football players have on each other,” said Uplifting Athletes Executive Director Rob Long, who attended the event Sunday morning.

“More than 30 Notre Dame football players showed up and they did a phenomenal job. There were more than 70 patients, siblings and caregivers The bowling alley staff did a phenomenal job. This is a community business giving back by donating their facility to make this possible. We are so proud of what this Uplifting Experience has become.”

When the Notre Dame Chapter joined the Uplifting Athletes team six years ago the annual bowling event was primarily an awareness event for Uplifting Athletes and the Rare Disease Community. 

As more rare disease patients, families and caregivers started coming to the event, the impact of those relationships spawned a shift in the focus of this event from just awareness to all about making this a special day for rare disease patients, their families and caregivers.

“It was great to see how happy the kids were and how great the players were with the kids,” Long said. “A bowling event like this a perfect Uplifting Experience and benefits everybody involved.”

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