There are more than 7,000 rare diseases but we are one rare disease community. Regularly, Uplifting Athletes will put one rare disease center stage to give that disease and its community a chance to shine.
Rare Disease: Hodgkin’s disease
Brief Description: Hodgkin’s disease is one of a group of cancers known as a lymphoma – a general term used to describe cancers that affect the lymphatic system, especially the lymph nodes. Tumors often form in the lymph nodes and/or the area around the nodes. The exact cause of Hodgkin’s disease is unknown, but some classic symptoms include fever, night sweats, and weight loss may occur along with swollen lymph nodes. Hodgkin’s disease affects the tissues and lymph nodes of the lymphatic system. The lymphatic system, which is part of the body’s immune system, consists of a complex series of thin vessels that are similar to blood vessels and run throughout the body. Treatment of Hodgkin’s disease depends on the stage of the disease. Radiotherapy and chemotherapy are the two main treatment options.
Rare Connection: Former Iowa State defensive lineman Mitchell Meyers became the ninth winner of the Rare Disease Champion award in 2017. Meyers endured a long and difficult 18-month journey with the rare disease Hodgkin’s lymphoma. An impact player in 2013 and 2014 for the Cyclones football team, Meyers lost his 2015 season when he was diagnosed in February of that year. He left school and returned home to Texas to begin his fight. He vowed to his teammates he would return for the 2016 season. During his 13 months of chemotherapy and radiation treatment, Meyers suffered a serious setback when he became one of those rare patients who had a relapse. He went through a stem cell transplant early in 2016, and playing football again became less of a reality with each passing month. But Meyers never gave up. He did what he could to keep his body in shape, despite losing more than 50 pounds, with the commitment to overcome the odds and play again. Just prior to preseason camp for the 2016 season, Meyers hard work paid off and he was cleared to practice. But he had been away from the game for 18 months. With nothing promised to him by the coaching staff other than an opportunity to compete, Meyers went out and won a starting job at defensive end and served as an inspiration for his Cyclone teammates. He was voted as a team captain for the 2017 Iowa State team and wore the No. 58 for the Cyclones that year. Each season Iowa State hands the No. 58 jersey to a lineman who best embodies the spirit of a beloved former coach who died suddenly in 2014. Meyers not only earned a starting spot, he became a big-time contributor up front defensively for the Cyclones, playing in all 12 games, recording 30 tackles and becoming an Academic All-Big 12 selection. Currently, Meyers is working for Houston-based Crane Logistics in their year-long Leadership Development Trainee program.
Learn More: There is one FDA approved treatments for Hodgkin’s lymphoma, Leukine. To learn more about clinical trials go here. Currently there are more than 1,100 active clinical trials for Hodgkin’s disease. Some of the most well-respected resources inside the rare disease community include National Institute of Health (NIH), National Organization for Rare Disorders (NORD) and Global Genes.